he thinks it's a key too, I guess...

This is what a healthy Nucleus 5 looks like:


This is what a Nucleus 5 looks like after it has been used as a key in a keyhole at Grandma's house:


It's a good thing that it was just a ear hook, and not an important part of the processor, like say... the coil, the rechargeable battery, the microphones, or anything else. This accessory could have just popped off, if it weren't held in place with a tiny medal rod because it's a choking hazard, but I certainly would rather have it break than something else. And, I have quite a few extras at home.

Although Lucas takes more to his new ear every day, this is a good illustration of how he still feels about it.  He'd rather pretend like it's a key.

Last week at CHOP, Lucas was squirrelly, but still had a pretty good day. We had three appointments in three hours, but we got a good audiogram, he performed decently for speech and we saw his ENT for the first time since surgery. He is hearing with his new ear as well as he is with his old ear. He's not processing sound the same way yet, but he certainly has good access to it. His audi gave him a word recognition test in the sound booth that he typically gives to Kindergartners, and Lucas got something like 87% accuracy with both ears (he had to repeat what he heard), including words that he wasn't very familiar with, like vase. I think it's pretty amazing that the professionals with which he works are willing to give him assessments that are way above his age level, just to see how he does. I'm progressive. I like progressive.

He wasn't breaking any records with speech, but he was doing more than he was last time, and is certainly showing progress. We'll take it. Last night when I was testing his Lings, he was able to identify ahhh, ssss, and eeee correctly, but he was confusing shhh with ssss and switching oooo with mmmm. He can definitely recognize and repeat his name though. That was one of the first things he could do with his first ear too. Again, he's progressing, but still has a ways to go. He works hard with speech therapist every week though with his new ear alone, and we continues to see those glimpses.

Our visit with our ENT has resulted in 2 weeks of antibiotics and another appointment this Wednesday. Lucas has fluid in his newly implanted ear, and we need to see whether it's fluid as a result of having had a cold a few days before our visit, or whether the CSF gusher that occurred during surgery is leaking. The scar from his right branchial cleft cyst removal has also opened up, and we need to see whether the cyst has returned (which is definitely a possibility), or else is just a fluke thing with the incision. Both could result in another surgery, depending on what the surgeon sees on Wednesday.

On a happier note, Lucas really enjoyed the warm weather today. We're so looking forward to spring.

haha..have a great weekend everybody and stay out of trouble! (unlike this baby)!

Hopes, Dreams & Wishes - Redux

I wrote this piece last year when I had all of three followers and I immediately thought of it when I read this week's Red Writing Hood's writing prompt: Write a piece about finding a forgotten item of clothing in the back of a drawer or closet. Let us know how the item was found, what it is, and why it's so meaningful to you or your character.

With some editing, here is Hope, Dreams & Wishes:

Long before I ever thought I'd have children and certainly long before I had Lucas, I bought this little sweater. I found it at Old Navy, of all places. It was originally $16.50 and had been marked down to $3.99. The tag is still on it.

From the moment I saw it, I thought it was precious.

Navy blue is my favorite color and I loved the adorable red heart with the arrow going through it and something came over me and I just had to have it. I remember thinking at the time while standing in the check out line, I'm nowhere near ready to have children, why on earth am I buying this?!? I don't even have a boyfriend.

It took me a while to realize that this tiny little sweater represented something stupendous and wonderful. Something bigger than myself. Something that was yet to be. It represented where my life was going to be someday. Where my life, if I was lucky enough, was heading...

True love, romance, marriage, children, cuddles, giggles, and a lifetime of memorable firsts and happy moments.

A childhood, not unlike my own.

The sweater stayed safely wrapped in tissue paper in the bottom of my pajama drawer for years, but each February when Valentine's Day rolls around, I remember the sweater.

Just last week, ironically the week before Valentine's Day, I was organizing Lucas' closet and I came across this tiny sweater. I was about to add it to the donation pile until I realized what it was.

Maybe someday we'll have a little sister for Lucas, as the sweater is far too feminine for him to wear and at size 3-6 months, far too small for him anyway.

I gingerly put the sweater back on the hanger, returned it to the closet and there it will stay as a peaceful reminder that so many of my hopes, dreams and wishes have already come true.

Click here to read the original piece posted February 12, 2010: Hopes, Dreams & Wishes

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